Stephanie Burr profile picture

Looking for that Cure!

A personal campaign sponsored by Stephanie Burr

Support Me

Welcome to my CURE for IBD personal fundraising page!

When I was a young child I kept suffering from stomach pains that were unimaginable, I couldn't eat or even keep anything in. The doctors kept telling my parents I just had a bug, here are some antibiotics and she should be better soon. Syracuse Hospital was able to see me and did an emergency upper/lower GI; Finally we had an answer. In 1999 I was diagnosed with Crohn's disease. I have been on many different medications through the years, but now my body is in the advanced stages now where my body becomes immune to medications, and stops accepting them. I am also now considered high risk for colon cancer. I am currently on Humira shots that was founded from donations that go to these charities, and it is keeping me going every day. When I moved to Vermont I realized there were no support systems in place so I have pushed to get more awareness. Vermont now has a Cure for IBD walk, and I have created a page on Facebook for patients, and family/close friends of those who suffer from this disease. (Crohns and Colitis in Vermont) My hopes is to have those suffering find comfort in knowing they are not alone and there are others for them to share their stories with or get ideas for Doctors and/or Medications. I hope to see the day when a cure is found. 

I have decided to make a difference in the fight against Crohn's disease and ulcerative colitis by becoming a fundraiser in the CURE for IBD community!

CURE for IBD was founded on the belief that if more funds are allocated to research, new treatments and cures will be found sooner.  For many people, this can't happen quickly enough.

I am very proud to say that 100% of all donations I receive will be allocated directly to IBD research.  CURE for IBD will not use any of these funds for overhead, administrative, or event expenses.

I can't thank you enough for your support.  Your generosity brings hope for so many people who suffer from these diseases.

Thank you!


The mission of CURE for IBD is to fund research towards new therapies and cures for Crohn's disease and ulcerative colitis. CURE for IBD was founded by parents who have dedicated themselves to finding cures for their children and everyone else living with Inflammatory Bowel Disease. CURE for IBD does not pay any participant event or travel expenses, and only funds research with the goal of finding cures sooner.
Over 1.6 million Americans (1 in 200) are affected by Inflammatory Bowel Disease, which includes Crohn's disease and ulcerative colitis, insidious and debilitating diseases in which the immune system attacks the digestive system. These are life-long chronic conditions that often result in extended hospital stays and the need for multiple surgeries over a person's lifetime. Crohn's and ulcerative colitis, along with many of the medications used to manage IBD, lead to an increased risk of cancer and other conditions. Complications can be life-threatening or fatal.
Children are the fastest-growing population being diagnosed, sometimes before the age of 1, and their symptoms are often more severe.